GAMBARAN PERAWATAN DIRI ANAK REMAJA PENYANDANG AUTISM SPECTRUM DISORDER DI ASRAMA
Adolescents with ASD who are living in dormitory with only the assistance of caregivers and without the presence of parents are demanded to be more independent in self-care. Complex disorders that occur in children with Autism Spectrum Disorder (ASD) affect the child's self autonomy to fulfill self-care needs. This study aims to identify the description of self-care agency in adolescents with ASD who are living in dormitory of SLB “X” in Bandung District.This research used a quantitative descriptive design. The sample in this study was adolescents with ASD who are living in dormitory, used total sampling technique with the total of 35 people. The instrument of this study was Kenny Self Care Evaluation (KSCE) which was analyzed and presented in tabular form using frequency distribution in percentage.The results showed that in personal hygiene (74.3%) and toileting (71.4%) of respondents experienced total dependence. In transfer activities (77.1%), dressing (65.7%), and feeding (82.9%) of respondents needed minimal assistance or supervision. However, in activities in bed and locomotion all respondents were independent. The conclusion from this study shows that adolescents with ASD experienced the lowest level of independence where they needed total support in carrying personal hygiene and toileting activities. Thus, it is essential for school and dormitory managers to work closely with community nurses to improve adolescent's skills in self-care by providing education to both adolescents and caregivers.
Anderson, S. (2012). Dressing for Success: How Self-Help Skills Can Help Individuals with Autism.
Autism Speaks. (2018). Sleep_Autism Speaks. Retrieved from https://www.autismspeaks.org/sleep
Cocchiola, et al. (2012). Toilet Training Children With Autism and Developmental Delays: An Effective Program for School Settings. Behavior Analysis in Practice, 5(2), 60–64. https://doi.org/10.1007/bf03391824
Karsih. (2012) Meningkatkan Kemampuan Bantu Diri Anak Autistik Melalui Metode Intervensi Dan Tingkat Kecerdasan. 26(1), 115–124.
Karst, J. S., & van Hecke, A. V. (2012). Parent and Family Impact of Autism Spectrum Disorders: A Review and Proposed Model for Intervention Evaluation. Clinical Child and Family Psychology Review, 15(3), 247–277. https://doi.org/10.1007/s10567-012-0119-6
Kementerian Pemberdayaan Perempuan Dan Perlindungan Anak. (2018). Hari Peduli Autisme Sedunia: Kenali Gejalanya, Pahami Keadaannya. Retrieved from https://www.kemenpppa.go.id/index.php/page/read/24/1011/pembangunan-manusia-berbasis-gender-tahun-2012
Kindregan, D., Gallagher, L., & Gormley, J. (2015). Gait Deviations in Children with Autism Spectrum Disorders: A Review. Autism Research and Treatment, 2015, 1–8. https://doi.org/10.1155/2015/741480
Lestari, L., Herini, E., & Gamayanti, I. L. (2017). Main Caregiver ’ S Experience In Meeting Self-Care Needs Among Adolescents With Asd In Pontianak Municipality , West Borneo , Indonesia : A Qualitative Study. 3(4), 316–328.
McDowell, I. (2006). Measuring Health: A Guide to Rating Scales and Questionnaires (3rd ed.). America: Oxford University Press, 2006.
McNeil, C. B., & Hembree-Kigin, T. L. (2010). Autism Spectrum Disorders. https://doi.org/10.1007/978-0-387-88639-8_12
Meiring. (2016). Transition for Adolescents with Autism Spectrum Disorder_ South African Parent and Professional Perspectives _ Psychiatry. https://doi.org/https://doi.org/10.3389/fpsyt.2016.00093
Mruzek, D., & Aponte, C. (2016). Seven toilet training tips that help nonverbal kids with autism | Autism Speaks. Autismspeaks.Org. Retrieved from https://www.autismspeaks.org/expert-opinion/seven-toilet-training-tips-help-nonverbal-kids-autism
Nadon, G., Feldman, D. E., Dunn, W., & Gisel, E. (2011). Association of Sensory Processing and Eating Problems in Children with Autism Spectrum Disorders. Autism Research and Treatment, 2011, 1–8. https://doi.org/10.1155/2011/541926
National Autistic Society. (2016). Autism - National Autistic Society. Retrieved January 21, 2020, from https://www.autism.org.uk/about/what-is/asd.aspx
Piccin, S., Crippa, A., Nobile, M., Hardan, A. Y., & Brambilla, P. (2018). Video modeling for the development of personal hygiene skills in youth with autism spectrum disorder. Epidemiology and Psychiatric Sciences, 27(2), 127–132. https://doi.org/10.1017/S2045796017000610
Richardson, D. (2016). Toilet training for children with autism. Nursing Children and Young People, Vol. 28, pp. 16–22. https://doi.org/10.7748/ncyp.28.2.16.s21
Rimmington, M. (2019). Puberty: challenges for adolescents on the autism spectrum. Learning Disability Practice. https://doi.org/10.7748/ldp.2019.e1961
Roux, A. M., Shattuck, P. T., Rast, J. E., Rava, J. A., & Anderson, K. (2015). National Autism Indicators Report: transition into young adulthood. Philadelphia: A. J. Drexel Autism Institute, Drexel University.
Sholihah, U. (2016). Pembelajaran Bina Diri Mandi Pada Anak Autis Di SLB Dian Amanah Yogyakarta.
Smith, L., Maenner, M., & Seltzer, M. (2013). Developmental Trajectories in Adolescents and Adults with Autism: The Case of Daily Living Skills. 1390, 1–16. https://doi.org/10.1016/j.jaac.2012.03.001.Developmental
Vismara, L. A., Rogers, S. J., Ogletree, B. T., Oren, T., Mcphilemy, C., Dillenburger, K., … Wie, M. (2010). Treatment of Autism Spectrum Disorder in Children and Adolescents. Journal of Autism and Developmental Disorders, 40(1), 18–41. https://doi.org/10.1007/s10803-009-0834-0
Wertalik, J. L., & Kubina, R. M. (2017). Interventions to improve personal care skills for individuals with autism: A review of the literature. Review Journal of Autism and Developmental Disorders, 4(1), 50-60.
Wijayanti, A. P., & Mutalazimah, M. (2018). Hubungan Asupan Energi dengan Status Gizi Anak Autis di Yayasan Pembinaan Anak Cacat (YPAC) Kota Surakarta. Kesehatan, 11(1), 9–15.
World Health Organization. (2020). Autism spectrum disorders. Retrieved July 10, 2021, from https://www.who.int/news-room/fact-sheets/detail/autism-spectrum-disorders